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Information and counselling

Care for a cleft child poses many challenges to parents. This begins with feeding, which is often difficult depending on the severity of the cleft lip or palate, and can result in the child not being able to eat enough to grow properly. Family and older cleft children are often left ashamed and traumatized by the reactions of their extended families and community, who often assign blame to the parents or even ridicule or shun the afflicted child, leaving them traumatized. Once they have learned that cleft can be treated very well, many poor families have little knowledge on how exactly this is done and thus do not know what to expect of the process, leaving them worried and fearful.

All these and many other issues can be helped by information and counselling. Our representatives offer information that helps with all aspects of managing cleft, from special feeding techniques that can help a cleft child gain enough weight for surgery to be possible, to information on how cleft is formed and that the parents are not to blame for it, to information on how exactly cleft treatment works and how to avoid or deal with any of the problems that can arise.

Cleft treatment is often a multiyear process, in the most severe cases starting with getting the child healthy enough to operate on, continuing through the repair operations for lip and palate, and ending only when the child has reached adulthood. Our representatives guide the patients and their families through the entire process, helping with any needed information and working to ease concerns arising from the condition or the treatment.

Learn how to contact our local representatives on our contact page.